For US Health Care Professionals

Patient + Caregiver Stories

Voices of Hardship and Hope

There are few ordinary days for patients and families living with progressive familial intrahepatic cholestasis (PFIC). Some are filled with challenges, some are filled with courage, and others are simply filled with uncertainty. And while each patient and family have a unique experience and story, there is a shared thread of hope among everyone living with this rare disease.

Hear from patients and their families below.

Trey’s Story
Cedar’s Story
PFIC=progressive familial intrahepatic cholestasis.