For US Health Care Professionals

Patient + Caregiver Stories

Voices of Hardship and Hope

From symptom onset to the time of diagnosis and beyond, patients with Alagille syndrome (ALGS) experience a full spectrum of emotions. While each patient and family have a unique experience and story, there is a shared thread of hope among everyone living with this rare disease.

Hear from patients and their families below.

Jocelyn’s Story
ALGS=Alagille syndrome.